My son Benjamin was born a healthy beautiful 6lb baby at 10months of age. Everything started to change when he began walking and had no balance, he would fall over with every step he took. He also was not a happy baby as he was always crying and fussing. I took him to see the pediatrician and at first they blew it off so I took him back again they then decided to send him to see a nurologist at Penn State Hershey Medical Center.
The doctor sent him for a MRI and we got those results the same day. The doctor called and said he was talking to a neurosurgeon and explained what the findings were. It was called a supra cellar arachnoyd cyst with obstructive hydrocephalus. He then said that it was bad, and our world was devastated.
We then took him to see a pediatric nerosurgeon at Hershey Medical Center who explained to us the findings and what we needed to do. He also explained to us what hydrocephalus was as we had no idea at the time what it was. The doctor then scheduled surgery. The surgery was called ETV, and they were going to in and try to pop the cyst.
The cyst is located at the bottom of his brain. Well the ETV didn't work and 3 months later he had another surgery to put a shunt in place. The shunt is in place and working great while waiting on the second surgery, he lost everything; speech, walking and sitting up on his own. All he could do was lay. He has since began taking steps, sitting on his own and making sounds.
He gets physical therapy and occupational therapy as well as developmental therapy. He is doing very well and is progressing nicely. He is behind in all of the things that normal children are doing at this age but he will catch up. I have faith in that.
Thank you to the doctor's at Penn State Hershey Medical Center.