Delaney was born on her due date in September 2010. Between six and nine months I was growing very concerned about her gross motor skills, as she was not making the progress her two older sisters had made. At her one year check up I mentioned this to her pediatrician. We decided to keep an eye on things and wait until her 15 month check-up to see if she still had some delays. A few weeks after Delaney's appointment, she developed Clonus in her legs. Delaney's pediatrician ordered a MRI.
On December 20, 2011 she had the MRI. The doctors found that her ventricles were enlarged and she had a large Posterior Fossa Arachnoid Cyst. The very next day they placed a VP shunt in her. Two months later she had to have a shunt revision surgery. After that surgery, she was a different little girl. She started talking more and was walking a couple months later. She made wonderful progress in speech, occupational, and physical therapy.
However, a couple months ago in September 2012, Delaney got a shunt infection. She ended up staying in the hospital for 30 days. During that hospital stay, she was treated with antibiotics for the infection, had a shunt malfunction, surgery to have the shunt removed, and an ETV surgery. Her pressure increased after the ETV surgery and she was leaking from her sutures, so she had a spinal tap to help relieve the pressure. Eventually they had to place a subdural shunt. During the shunt surgery she got a small nick on her bowel, so Delaney's stay was extended. On the day she was discharged they removed the subdural shunt. So far the ETV procedure is working and Delaney is shunt free. She is a happy, active little girl again.
Delaney has been such a trooper through all of this. She has taught me so much about life and how to embrace each moment in a positive way. We are so blessed to have Delaney in our family.