PHF WALK Opening Ceremonies

Thanks to a WALK attendee who recorded the event, we are able to bring you the Opening Ceremonies of the PHF WALK 2009, where Congressman Leonard Lance, (NJ-7), who was the Co-sponsor of H. Res. 373, naming the month of September as “National Hydrocephalus Awareness Month“, was the featured speaker.

PHF WALK 2009 PICTURES

PHF WALK 2009 RAISES OVER $30,000 AS OVER 300 PEOPLE WALK TO “FUND A CURE” FOR HYDROCEPHALUS

MEDIA CONTACT:
Kim Illions
President
Pediatric Hydrocephalus Foundation, Inc.
(732)634-1283
kim@HydrocephalusKids.org

FOR IMMEDIATE RELEASE

PHF WALK 2009 RAISES OVER $30,000 AS OVER 300 PEOPLE WALK TO “FUND A CURE” FOR HYDROCEPHALUS

Woodbridge, NJ – Over 300 people took part in the 2009 PHF WALK & Family Fun Day yesterday, as the Pediatric Hydrocephalus Foundation, Inc. raised over $30,000 in their signature event. After stormy weather on both Friday & Saturday, the 2009 PHF WALK Honorary Chairman, Bill Evans from Channel 7 Eyewitness News, predicted clear and sunny skies and he was correct, as the day couldn’t have been any nicer.

United States Congressman Leonard Lance, (NJ-7th), gave an uplifting and emotional speech as the WALK’S Keynote Speaker, and was also the recipient of everyone’s gratitude for his work and leadership on the passage of H. Res. 373 this past July, which designates the month of September as “National Hydrocephalus Awareness Month.”

In addition to the 2 mile WALK around Roosevelt Park, guests were entertained by a live DJ, kids had their faces painted courtesy of Izzy Entertainment and everyone was treated to visits by the Professional Wrestlers from the Independent Wrestling Federation and the New Jersey Devils Dancers.

Kimberly Illions, the President of the PHF, Inc. said, “I am completely overwhelmed with the turnout of attendees at yesterday’s PHF WALK. In just 8 short months, the PHF has accomplished so much. We had record breaking attendance and raised over $30,000 in our first major event. I’m so proud of the Board of Directors and the many volunteers who helped make the PHF WALK 2009 a reality and success.”

The next event for the Pediatric Hydrocephalus Foundation, Inc. will be the “Westdyke Family Spaghetti Dinner”, held on Sunday, November 1st at the Elks Lodge #2487 of Edison. The event is hosted by PHF Board Members Jennifer and Jeff Westdyke, who have a 3 1/2 year-old son, Jeffrey, with Hydrocephalus.

To view photos of the PHF WALK or for information for all future events, please go to: www.HydrocephalusKids.org.

All proceeds will benefit the Pediatric Hydrocephalus Foundation, Inc., the nation’s largest organization dealing solely with the support, education, advocacy and funding for research of Pediatric Hydrocephalus.

For more information please contact Kim Illions at kim@Hydrocephaluskids.org or (732) 634-1283.

US Congressman Leonard Lance Attending the September 13th PHF WALK 2009

MEDIA CONTACT:
Kim Illions
President
Pediatric Hydrocephalus Foundation, Inc.
(732)634-1283
kim@HydrocephalusKids.org

FOR IMMEDIATE RELEASE

*Update: US Congressman Leonard Lance Attending the September 13th PHF WALK 2009

Pediatric Hydrocephalus Foundation Gears up for 2009 Statewide WALK to “Fund a Cure for Hydrocephalus”

Congressman Leonard Lance, (NJ-7th), has confirmed his attendance for this Sunday’s PHF WALK 2009, at Roosevelt Park in Edison, NJ at 11:00am. The Hydrocephalus community owes Congressman Lance a great deal of gratitude for his leadership and commitment to see H. Res. 373 pass in time for this year’s WALK. The Resolution, which designates the month of September as “National Hydrocephalus Awareness Month, passed this past July before Congress adjourned for the summer recess.

Cole Illions is a small boy with a huge smile and two parents, Mike and Kim, who dote on him. He also has a little known incurable brain disease known as Hydrocephalus, an accumulation of fluid in the brain that affects an estimated one million Americans of all ages. One in 500 children born this year will be diagnosed with Hydrocephalus.

This is why Mike and Kim Illions, along with 3 other families, have founded the Pediatric Hydrocephalus Foundation, Inc. They have become tireless advocates for their children and others living with Hydrocephalus. The Pediatric Hydrocephalus Foundation authored H. Res. 373 designating the month of September as “National Hydrocephalus Awareness Month.” This resolution was recently passed unanimously by the US Congress in July 2009. Mike & Kim’s Congressman Leonard Lance was one of the first to Co-Sponsor H. Res. 373 and helped to get it passed in time for this year’s WALK.

On Sunday, September 13th, 2009 at Roosevelt Park in Edison, NJ they will be joined by friends, family, and people living with Hydrocephalus along with well wishers in a 2 mile walk to raise awareness and funds. Registration begins at 10:30am and the walk will start at 11:00am although it is recommended to register ahead of time. This event will be attended by over 300 people.

This year’s WALK has the pleasure of Bill Evans of ABC Channel 7 News as its Honorary Chairperson. There will be live music, entertainment for the kids, free food, soft drinks and a visit from the NJ Devil’s Dancers. The WALK will also have various items up for auction and raffle.

To register for the WALK and/or donate to the PHF, Inc., go to: www.HydrocephalusKids.org and click on “Register” or “Donate”.

All proceeds will benefit the Pediatric Hydrocephalus Foundation, Inc, the nation’s largest organization dealing solely with the support, education, advocacy and funding for research of Pediatric Hydrocephalus.

For more information please contact Kim Illions at kim@Hydrocephaluskids.org or (732) 634-1283.

Pediatric Hydrocephalus Foundation, Inc. Introduces Third State Chapter

For Immediate Release
Contact: Kimberly Illions
Tuesday, September 8th, 2009
(732) 634-1283
http://www.HydrocephalusKids.org
kim@hydrocephaluskids.org

Georgia Joins the PHF, Inc. In Battle to ‘Fund a Cure’ for Hydrocephalus

Woodbridge, NJ – The Pediatric Hydrocephalus Foundation, Inc. is pleased to announce the State of Georgia as the third official PHF, Inc. chapter, joining the recently formed chapters in Missouri and California, in addition to the New Jersey founding chapter.

Sawanda Middleton-Spinks, who was named the State Director of the Georgia chapter, is excited to be joining the PHF, Inc. family; “I am so excited to partner with PHF, Inc. and do my part here in Georgia! I want to start by getting the word out that local support IS HERE! Meetings will follow shortly after securing a meeting place. It’s then that we as a group will start creating fund raisers to raise monies for local hospitals, doctors and researchers who help with our Hydrocephalus children.”

Kim Illions, the President of the Pediatric Hydrocephalus Foundation, Inc. and mother of a 4 year old boy with Hydrocephalus, added that “Sawanda is going to do a great job for the Hydrocephalus community in the State of Georgia. Her dedication and commitment to helping her son and other children with Hydrocephalus is an inspiration, and she will do great things in helping us “Fund a Cure” for Hydrocephalus.”

Sawanda’s introduction to Hydrocephalus mirrors that of so many other families; “The first time I heard of Hydrocephalus was when I was 7 months pregnant with my only child, my son Ezekiel. A perinatologist diagnosed him with Hydrocephalus. He gave us the worse case scenario of what my son’s quality of life ‘may’ be. This left my husband and I devastated, feeling angry, sad, confused and alone. I want to help “fund a cure” for Hydrocephalus. More money means more research, updated information and advanced technology to help our children with an improved quality of living with this condition.”

The mission of the Pediatric Hydrocephalus Foundation is to educate the community by raising the level of awareness about this incurable brain condition. The PHF will also provide support to the families, friends and children who are diagnosed with Hydrocephalus.

The PHF will raise money for and work with the medical community in searching for a cure and additional treatment options for those with Hydrocephalus.

Additionally, the PHF will advocate on behalf of the members of the Hydrocephalus community and work with policy makers at the State and Federal level to raise awareness and push for more research and support in our fight against Hydrocephalus. The PHF will be holding fundraising events to accomplish the goals stated above.

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