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  • PHF In The News

    December 26, 2010 by  
    Filed under

    October 2017: Fairfield Couple Co-Hosts ZenRide Benefit To Honor Their Little Girl

    October 2017: As she battles brain disease, Isabella Sacharczyk is on a mission to help others

    August 2017: Fundraiser held for teenager battling incurable brain condition

    August 2017: 6-year-old with incurable brain condition writes book about her 17th brain surgery

    April 2017: Easthampton fundraiser raises money for research into debilitating condition

    September 2016: Westhampton mother, daughter raise money for medical research

    August 2016: Local girl heads to nation’s capitol

    July 2016: ‘Bella’s Journey’ to raise funds against brain disease

    March 2016: Elyse Clough’s Story on Hydrocephalus

    March 2016: Elyse Shares Her Story on Hydrocephalus

    March 2016: Colbert boy raising awareness about hydrocephalus

    March 2016: Vernon girl gives courage a new face

    November 2015: Edison family hosts dinner to benefit Hydrocephalus research

    September 2015: Eaton boy battles hydrocephalus, sparks mother to start advocacy group to help

    September 2015: This incurable brain condition affects 1 in 500 newborns

    September 2015: Rare medical condition is a ‘ticking time bomb’:
    Foundation organizers raise $4,000 for research on hydrocephalus

    September 2015: Living With Hydrocephalus: Samantha’s Story

    September 2015: Biker-Barre + Bubbly fund-raiser to raise awareness of pediatric brain condition

    September 2015: Fairfield Spinning Studio Hosts Ride For Rare Childhood Medical Issue

    August 2015: Lance To Lead Congressional Hydrocephalus Caucus

    August 2015: Bella’s journey to raise Hydrocephalus awareness

    August 2015: Benefit set for teen with incurable brain condition

    July 2015: UT Arlington-UNTHSC collaboration to build prototype shunt flow monitoring system


    May 2015: In The Name Of Kindness: Cranbury Idol Fund-Raises For Pediatric Hydrocephalus

    March 2015: Mountain View student named poster child for hydrocephalus foundation

    February 2015: Orange County mom joins Pediatric Hydrocephalus Foundation

    December 2014: Woodbridge 5-year-old inspires against all odds

    December 2014: Hartselle PD makes post-’no shave’ donation

    December 2014: HPD raises over $3,000 for hydrocephalus

    December 2014: Hartselle police raise thousands for charity

    November 2014: HPD officers grows beards for hydrocephalus

    November 2014: Hartselle police officers go ‘beard to beard’ to raise money

    September 2014: Glen Ridge Woman Spreads Awareness of Pediatric Hydrocephalus

    September 2014: Yorktown Walk Will Raise Money For Brain Condition

    September 2014: Fundraiser walk to be held Sept. 20 for pediatric ailment

    September 2014: Spreading awareness
    Families band together in outreach over children’s rare conditions

    August 2014: The Female Face of Hydrocephalus; ANA Patient Hailie Mussinan Selected as 2014 National “Face” of Hydrocephalus Awareness

    July 2014: Yorktown Family Raises Awareness Of Brain Condition Afflicting Daughter

    June 2014: Fairfield Woman Inspired To Run Half-Marathon By Friend’s Daughter

    June 2014: Southport runner running for friend’s child

    May 2014: Hamilton woman takes on Devilman Duathlon to raise money, awareness for rare brain disease

    May 2014: Family beats odds on child’s diagnosis

    May 2014: GM plant helping raise awareness of rare disorder; benefit concert Saturday

    April 2014: Hailie Mussinan of Woodbridge tapped as national ‘face’ of hydrocephalus awareness for incurable brain condition

    April 2014: PHF In The News: Event Notice: Manchester PBA Golf Outing May 5

    January 2014: PHF in the News: Chesnee boy with brain condition selected for awareness campaign

    January 2014: PHF in the News: Fords girl chosen as face of hydrocephalus campaign

    January 2014: PHF in the News: Woodbridge four-year-old selected as ‘Face’ of 2014 National Hydrocephalus Awareness campaign

    January 2014: PHF in the News: Woodbridge Tot Chosen as the Face of National Hydrocephalus Campaign

    January 2014: PHF IN THE NEWS: PHF Louisiana State Chapter Director Featured in the January Issue of The Acadiana Lifestyle

    October 2013: PHF IN THE NEWS: Hydrocephalus Awareness Month: Audubon Youth Advocating For Her Condition

    October 2013: PHF in the News: Run raises money, awareness

    October 2013: PHF in the News: A Race for Casey Wray

    October 2013: PHF in the News: Mini-Golf Morning to Raise Awareness of Pediatric Hydrocephalus

    September 2013: PHF in the News: Race to find a cure for local child’s life-threatening condition

    September 2013: PHF in the News: 18 Holes for Pediatric Hydrocephalus Awareness

    September 2013: PHF IN THE NEWS: PHF IN THE NEWS: A local boy battles Hydrocephalus

    September 2013: September Is National Hydrocephalus Awareness Month

    September 2013: PHF IN THE NEWS: PHF Michigan State Chapter Co-Director’s Featured in the September Issue of The Altum Advocate

    September 2013: PHF in the News: Hickenlooper recognizes brain-swelling condition

    September 2013: PHF in the News: Walk for the Pediatric Hydrocephalus Foundation This Weekend

    July 2013: PHF in the News: Woman to raise funds for brain condition with golf tournament

    July 2013: Luca’s Mom Organizes July 9 PHF Golf Tourney

    June 2013: PHF Pennsylvania Presented With Donation Check

    May 2013: PHF In The News:’Something wasn’t clicking’: Macomb girl’s family shares effect of condition

    March 2013: “Face of a Foundation”: Bakersfield Boy Named National Face of Hydrocephalus Awareness

    March 2013: PHF Louisiana In The News: Mother Starts Hydrocephalus Support Group

    March 2013: PHF New York In The News: Town of Binghamton woman organizing hydrocephalus chapter

    January 2013: PHF Hawaii In The News: Hydrocephalus Medical challenge builds hope, strength, support

    January 2013: PHF’s Megan Elmore Featured in National Story on Hydrocephalus

    September 2012: PHF’s Danielle Terry Roberts Interviewed in Alabama’s Decatur Daily

    September 2012: PHF’s Cessilye Lawson Interviewed on FOX16-TV Arkansas

    September 2012: PHF’s Carrie Edgecomb & Daughter Interviewed on FOX26-TV

    September 2012: Durangoan seeks hydrocephalus cure: Woman’s son, 2 years old, has brain condition

    September 2012: PHF’s South Carolina State Chapter Director Amanda Pierce IN THE NEWS

    September 2012: PHF’s Donna West Wins Fox-17 TV’s Pay it Forward Person of the Week!

    August 2012: N. Cape May mom fights for funds, awareness for hydrocephalus

    July 2012: Upcoming golf tournament to benefit Pediatric Hydrocephalus Foundation

    June 2012: Aunt joins national pediatric nonprofit

    June 2012: Lapeer County family hosts fundraising event for research, awareness of rare brain condition

    April 2012: Rootstown girl part of national campaign as the face of a rare disorder

    April 2012: Jaden Brown to be hydrocephalus poster boy

    April 2012: DANTE’S DRIVE Chartiers Twp. toddler inspires others with hydrocephalus

    February 2012: Experimental Procedure Changes Charlotte Area Girl’s Life

    September2011: Glen Ridge High School Junior Goes to Congress

    September 2011: LOCAL PROFILE: Sawanda Spinks, President of Georgia Pediatric Hydrocephalus Foundation

    July 2011: PHF Colorado State Director Ashley Fallis, and her son Blake, were featured in the Greeley Tribune.

    April 2011: PHF Missouri State Chapter Director Shannon Sommers and her daughter Carly were honored with a Proclamation by the Mayor of Kansas City, Mark Funkhouser. Story was covered on TV by NBC.

    April 2011: PHF California State Director Kim Ruiz, and her son Joey, were featured in the Stockton Record.

    March 2011: PHF California State Director Kim Ruiz was featured in the Lodi News-Sentinel.

    March 2011: PHF Nebraska State Directors Robbie Dunlop & Melissa Yeshnowski, were featured in the Papillion Times section of the Omaha World-Herald newspaper.

    March 2011: PHF Rhode Island State Director Rebecca Minasian and her 5 year old daughter Caitlin, were featured on Providence, Rhode Island’s NBC-TV affiliate.

    February 2011: WASHINGTON, DC – The Pediatric Hydrocephalus Foundation Honors Congresswoman Michele Bachmann and Congressman Leonard Lance as ‘Heroes of Hydrocephalus’

    February 2011: WOODBRIDGE, NJ – Rep. Leonard Lance was honored last month by the Woodbridge-based Pediatric Hydrocephalus Foundation for his work in raising awareness for the incurable brain condition. PHF founders Michael and Kim Illions, along with their 5-year-old son Cole who suffers from this incurable brain condition, traveled to Washington, D.C., to present Lance and Minnesota Rep. Michele Bachmann with plaques naming them as Heroes of Hydrocephalus.

    February 2011: RED BANK, NJ – Pediatric Hydrocephalus Event – March 13, 2011 – Trenton Devils vs. Elmira: The following is information on a charity event I am running for the Pediatric Hydrocephalus Foundation. My son, Josh, a freshman at Monmouth University, was first treated with hydrocephalus when he was 21 months old. Josh was very fortunate that he did not need a shunt revision until his 18th birthday, December 2009. Unfortunately, Josh has been very sick, having undergone eight brain surgeries in the last two years.

    December 2010: WOODBRIDGE, NJ – A township-based organization helped raise $6,000 for a baby suffering from an incurable disease more than 1,800 miles away in Texas. The Pediatric Hydrocephalus Foundation matched $2,500 in donations for 1-year-old “Baby Klaus,” who was born with hydrocephalus, also known as “water on the brain.”

    October 2010: NY Channel 12 Coverage of the 2010 PHF WALK in NY for Hydrocephalus for the Pediatric Hydrocephalus Foundation. Interviewed were Event Coordinator Jennifer Mingst and her mother Irene.

    The event had over 200 people attend and raised over $20,000 for the Pediatric Hydrocephalus Foundation

    December 2009: Michael Illions, the Vice President and National Director of Advocacy for the Pediatric Hydrocephalus Foundation, was interviewed Saturday afternoon on the Jesse Kurtz Radio Show on WIBG-1020AM.

    October 2009: Congressman Leonard Lance – (NJ), the featured speaker at the PHF WALK 2009, welcomes the over 300 people who attended the WALK at Roosevelt Park in Edison, NJ.

    July 2009: Congresswoman Michele Bachmann (MN-06) & Congressman Leonard Lance (NJ-07) Discuss National Hydrocephalus Awareness Month, (H. Res. 373; Sponsored by the PHF, Inc.), on the Floor of the House of Representatives.

    July 2009: Honorary Chairman of the September 13th PHF WALK 2009, Bill Evans of Channel 7 Eyewitness News, visits the Menlo Park Mall in New Jersey for a book signing and takes a picture with Cole Illions.

    July 2009: Congresswoman Michele Bachmann, (MN) & Congressman Leonard Lance, (NJ) joined together with the Illions Family, Michael, Kim and their 4 year old son Cole, who has Hydrocephalus.

    This video will be sent to all members of Congress in hopes of receiving support for H. Res 373; designating September as “National Hydrocephalus Awareness Month”

    April 2009: Congresswoman Michele Bachmann introduces the Pediatric Hydrocephalus Foundation sponsored H. Res 373; Designating the month of September as “National Hydrocephalus Awareness Month.”

    June 2008: Michael Illions, Pediatric Hydrocephalus Foundation’s National Director of Advocacy, looks on as New Jersey State Senator Joe Kyrillos speaks in favor of SR49, which designates September 2008 “Hydrocephalus Awareness Month” in New Jersey.

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