• Home
  • Contact Us
  • I Want To
  • Resources
  • Features
  • About PHF
  • Caucus
  • Fundraiser held for teenager battling incurable brain condition

    August 2, 2017 by  
    Filed under Uncategorized

    Comments Off on Fundraiser held for teenager battling incurable brain condition

    bellasjourney2017
    HORSEHEADS, N.Y. (WENY) — The community came together to help raise money for a teenage girl battling an incurable brain condition.
         On Sunday, the third annual “Bella’s Journey” fundraising event was held at Raymour and Flanigan in Horseheads.
         
         The event was created by the family of Bella Sacharczyk, who is an eighteen-year-old girl battling with Hydrocephalus. 
         
         Throughout the day there were many things for visitors to do to raise money and awareness for the condition. 
         “We’re having a basket raffle, all donated by different people in the community,” said Bella’s Mother and the Massachusetts State Chapter Director for the Pediatric Hydrocephalus Foundation, Denise Sacharczyk. “We have a bounce house and food. We had the radio station was here today and we’re just raising money for Hydrocephalus for the awareness of Hydrocephalus and for the research.”
         Since Bella has been diagnosed with the condition, she has had twenty-three brain surgeries and countless hours of physical therapy to learn how to walk again. 
         If you want to know more about the condition, visit http://www.hydrocephaluskids.org

    Source:

    PHF In The News: Easthampton fundraiser raises money for research into debilitating condition

    May 13, 2017 by  
    Filed under Uncategorized

    Comments Off on PHF In The News: Easthampton fundraiser raises money for research into debilitating condition

    bingophf

    EASTHAMPTON, Mass. (WWLP) – One Hampshire County parent prays that one day science finds a cure to the disease that’s afflicted her daughter since birth.

    Denise Sacharczyk of Westhampton organized a fundraiser Sunday at the American Legion Post 224 in Easthampton. Her daughter suffers from Hydrocephalus, or as it is more commonly called, “water on the brain.”

    Sacharczyk told 22News, “My daughter has had 23 brain surgeries because of that. She lives with chronic pain, any day not being able to walk. A couple of times, she’s had surgeries and learned to walk all over again.”

    Sacharczyk is active in the Pediatric Hydrocephalus Foundation on behalf of her daughter and other young people suffering from “water on the brain.”

    It’s estimated that out of 1,000 newborns, two will be afflicted by this disabling condition.

    Source:

    Toddler Matthew Campuzano From Pennsylvania Joins His Big Sister as 2017 National Ambassador for Incurable Brain Condition

    January 6, 2017 by  
    Filed under Uncategorized

    Comments Off on Toddler Matthew Campuzano From Pennsylvania Joins His Big Sister as 2017 National Ambassador for Incurable Brain Condition

    MEET MATTHEW CAMPUZANO

    Toddler Matthew Campuzano From Pennsylvania Joins His Big Sister as 2017 National Ambassador for Incurable Brain Condition

    Matthew was born in April 2015, our fifth baby. He was diagnosed with Hydrocephalus at 20 weeks, and he developed in uterine very similarly to Julia.

    phfambassadormatt2 Once again, the Doctor’s prepared us for the worst, but we knew that Matthew would be a fighter like his big sister. He was born at 35 weeks, and he spent a few weeks in the NICU to receive his first shunt and get over the hurdles of prematurity.

    Matthew still has the shunt that was placed when he was 3 days old. It’s been working wonderfully for him. He has been receiving physical therapy since he was 6 weeks old, but he will be discharged very soon!

    At 18 months, he is walking and talking up a storm. He is the family comedian, and he makes us laugh all the time! Matthew became a big brother this past summer, and he loves our new baby so much!

    At this point, while we know it’s there, they have not found the genetic cause for Julia and Matthew’s Hydrocephalus. We need more research so we can make advancements!

    6-Year-Old Julia Campuzano From Pennsylvania Joins Her Brother as 2017 National Ambassador for Incurable Brain Condition

    January 6, 2017 by  
    Filed under Uncategorized

    Comments Off on 6-Year-Old Julia Campuzano From Pennsylvania Joins Her Brother as 2017 National Ambassador for Incurable Brain Condition

    MEET JULIA CAMPUZANO

    6-Year-Old Julia Campuzano From Pennsylvania Joins Her Brother as 2017 National Ambassador for Incurable Brain Condition

    Julia was born in October of 2010. She was our third child and the first girl! Our second son had passed away as an infant from a heart defect. At 20 weeks into my pregnancy, Julia was diagnosed with ventriculomegaly. As the pregnancy continued, the Doctor’s confirmed that she had severe Hydrocephalus.

    phfambassadorjulia2 We were told she may never walk, talk, see or function like an average child. We waited patiently for her arrival. She was born at 33 weeks, and she came out screaming. At 6 days old she received her first shunt. At 6 weeks old, she developed an infection and had her second and third surgery to remove and place a new shunt. She also developed epilepsy at this age.

    Julia has now had 5 brain surgeries, and she has come through them all with flying colors. She was behind in gross motor skills for the first two years of her life, but now she is doing wonderfully. Her epilepsy has given us a lot of trouble as we’ve navigated the vast array of medications and side effects, but she is well-controlled for now.

    She is now 6 years old and loving kindergarten. She is beginning to read and share her joy with the world. She is a special child who can cheer you up on your worst days.

    We can’t wait to see what the future holds for her!

    September 30th: “One Day….. One Donation”: PHF Hydrocephalus Awareness Money Bomb!

    September 29, 2016 by  
    Filed under Uncategorized

    Comments Off on September 30th: “One Day….. One Donation”: PHF Hydrocephalus Awareness Money Bomb!


    PHF September 30th Hydrocephalus Awareness Money Bomb
    “One Day….. One Donation”


    MAKE YOUR DONATION TODAY!

    Click to Enter the Hydrocephalus Awareness MONEY BOMB Donation Website!

    PHF September 30th Hydrocephalus Awareness MONEY BOMB!!!

    “ONE DAY….. ONE DONATION”

    The Pediatric Hydrocephalus Foundation (PHF), the nation’s #1 advocate for children with Hydrocephalus, needs your help Today for our 4th Annual Hydrocephalus Awareness MONEY BOMB to raise funds for our amazing initiatives & Hydrocephalus research project funding rolling out in 2016 and beyond!

    The PHF is dedicated to raising the level of awareness of this incurable brain condition, providing support to those who are diagnosed with Hydrocephalus, and most of all raising money to help fund a cure and better treatment options for our loved ones fighting this battle!

    We need your help TODAY to make it our best month ever for fundraising.

    So we’re asking everyone to participate again, in the 4th Annual Hydrocephalus Awareness MONEY BOMB TODAY so we can end this year’s Hydrocephalus Awareness Month with a bang, and keep the momentum going for the next few months and into 2017!

    If every supporter of the PHF who believes in our mission and wants to support the outstanding success we have had as advocates for children and families affected by Hydrocephalus contributes TODAY, we’ll have a record-breaking fundraising success.

    We are counting on you to contribute and push the PHF to new heights!!! Click below, and thank you for your generosity!!!

    Join us for this special On-Line Fundraising event- PHF’s Hydrocephalus Awareness MONEY BOMB!

    “ONE DAY….. ONE DONATION”

    As your making your donation, don’t forget to use the “comment” field to give a shout out to your Hydro Hero!

    The Pediatric Hydrocephalus Foundation is a non-profit 501 (c) (3) non-profit charitable organization. All donations are tax-deductible.

    Click to Enter the Hydrocephalus Awareness MONEY BOMB Donation Website!

    Next Page »