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Laurie Berkner Named National Spokesperson for the Pediatric Hydrocephalus Foundation, Inc.
June 16, 2010 by PHF
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Press Release
For Immediate Release
Contact: Kimberly Illions
Tuesday, June 15, 2010
(732) 634-1283
kim@hydrocephaluskids.org
http://www.HydrocephalusKids.org
Laurie Berkner Named National Spokesperson for the Pediatric Hydrocephalus Foundation, Inc.
Children’s Musical Artist Laurie Berkner To Be The “Voice” of September’s “National Hydrocephalus Awareness Month” Public Service Announcements To Be Heard In Every State In The Country Sponsored By The PHF, Inc.
Woodbridge, NJ – The Pediatric Hydrocephalus Foundation, Inc. (PHF) today formally announced that children’s musical artist Laurie Berkner of The Laurie Berkner Band will serve as their Celebrity National Spokesperson for this September’s “National Hydrocephalus Awareness Month.”
“We are thrilled to have Laurie Berkner joining us in helping to raise awareness,” stated Michael Illions, Vice President and National Director of Advocacy for PHF. “Laurie Berkner is one of the most recognizable names in the entertainment business to children and is a household name in tens of thousands of homes.”
Laurie will serve as the voice of the Pediatric Hydrocephalus Foundation’s Public Service Announcement for September’s “National Hydrocephalus Awareness Month.” The initiative will have the Berkner recorded PSA be heard on at least one radio station in every State in the Country for the entire month of September. Contracts with radio stations in almost 75% of the States have been finalized for this endeavor.
“I am happy to be a part of raising awareness of Hydrocephalus in the United States during September’s “National Hydrocephalus Awareness Month”, and help children like Cole Illions and so many others who are struggling with this incurable brain condition”, said Laurie Berkner.
You can visit the Pediatric Hydrocephalus Foundation’s website for more information and to check the radio stations from around the Country that are participating in this project.
About PHF
The Pediatric Hydrocephalus Foundation, a non-profit 501(c) (3) charitable organization, educates the community by raising the level of awareness about hydrocephalus and provides support to families, friends, and children affected by this brain condition. The PHF also raises money for and works with the medical community in searching for a cure and additional treatment options for those with hydrocephalus. Additionally, the PHF advocates on behalf of the members of the hydrocephalus community and works with policy makers at the state and federal levels to raise awareness and push for more research and support in the fight against hydrocephalus. All donations are tax-deductible. For more information, visit www.hydrocephaluskids.org.
About Laurie Berkner
Laurie Berkner regularly appears on Nick Jr., a television network aimed at children, in music videos played between programs and on the program Jack’s Big Music Show. Berkner has written two children’s books: Victor Vito and Freddie Vasco, based on her song “Victor Vito”, and Story of My Feelings. She has also put out a video and DVD, We Are…The Laurie Berkner Band; the DVD, has sold more than 400,000 copies since its 2006 release.
US Congressman Leonard Lance Attending the September 13th PHF WALK 2009
September 11, 2009 by PHF
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MEDIA CONTACT:
Kim Illions
President
Pediatric Hydrocephalus Foundation, Inc.
(732)634-1283
kim@HydrocephalusKids.org
*Update: US Congressman Leonard Lance Attending the September 13th PHF WALK 2009
Pediatric Hydrocephalus Foundation Gears up for 2009 Statewide WALK to “Fund a Cure for Hydrocephalus”
Congressman Leonard Lance, (NJ-7th), has confirmed his attendance for this Sunday’s PHF WALK 2009, at Roosevelt Park in Edison, NJ at 11:00am. The Hydrocephalus community owes Congressman Lance a great deal of gratitude for his leadership and commitment to see H. Res. 373 pass in time for this year’s WALK. The Resolution, which designates the month of September as “National Hydrocephalus Awareness Month, passed this past July before Congress adjourned for the summer recess.
Cole Illions is a small boy with a huge smile and two parents, Mike and Kim, who dote on him. He also has a little known incurable brain disease known as Hydrocephalus, an accumulation of fluid in the brain that affects an estimated one million Americans of all ages. One in 500 children born this year will be diagnosed with Hydrocephalus.
This is why Mike and Kim Illions, along with 3 other families, have founded the Pediatric Hydrocephalus Foundation, Inc. They have become tireless advocates for their children and others living with Hydrocephalus. The Pediatric Hydrocephalus Foundation authored H. Res. 373 designating the month of September as “National Hydrocephalus Awareness Month.” This resolution was recently passed unanimously by the US Congress in July 2009. Mike & Kim’s Congressman Leonard Lance was one of the first to Co-Sponsor H. Res. 373 and helped to get it passed in time for this year’s WALK.
On Sunday, September 13th, 2009 at Roosevelt Park in Edison, NJ they will be joined by friends, family, and people living with Hydrocephalus along with well wishers in a 2 mile walk to raise awareness and funds. Registration begins at 10:30am and the walk will start at 11:00am although it is recommended to register ahead of time. This event will be attended by over 300 people.
This year’s WALK has the pleasure of Bill Evans of ABC Channel 7 News as its Honorary Chairperson. There will be live music, entertainment for the kids, free food, soft drinks and a visit from the NJ Devil’s Dancers. The WALK will also have various items up for auction and raffle.
To register for the WALK and/or donate to the PHF, Inc., go to: www.HydrocephalusKids.org and click on “Register” or “Donate”.
All proceeds will benefit the Pediatric Hydrocephalus Foundation, Inc, the nation’s largest organization dealing solely with the support, education, advocacy and funding for research of Pediatric Hydrocephalus.
For more information please contact Kim Illions at kim@Hydrocephaluskids.org or (732) 634-1283.
Pediatric Hydrocephalus Foundation, Inc. Introduces Third State Chapter
September 7, 2009 by PHF
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For Immediate Release
Contact: Kimberly Illions
Tuesday, September 8th, 2009
(732) 634-1283
http://www.HydrocephalusKids.org
kim@hydrocephaluskids.org
PRESS RELEASE
Georgia Joins the PHF, Inc. In Battle to ‘Fund a Cure’ for Hydrocephalus
Woodbridge, NJ – The Pediatric Hydrocephalus Foundation, Inc. is pleased to announce the State of Georgia as the third official PHF, Inc. chapter, joining the recently formed chapters in Missouri and California, in addition to the New Jersey founding chapter.
Sawanda Middleton-Spinks, who was named the State Director of the Georgia chapter, is excited to be joining the PHF, Inc. family; “I am so excited to partner with PHF, Inc. and do my part here in Georgia! I want to start by getting the word out that local support IS HERE! Meetings will follow shortly after securing a meeting place. It’s then that we as a group will start creating fund raisers to raise monies for local hospitals, doctors and researchers who help with our Hydrocephalus children.”
Kim Illions, the President of the Pediatric Hydrocephalus Foundation, Inc. and mother of a 4 year old boy with Hydrocephalus, added that “Sawanda is going to do a great job for the Hydrocephalus community in the State of Georgia. Her dedication and commitment to helping her son and other children with Hydrocephalus is an inspiration, and she will do great things in helping us “Fund a Cure” for Hydrocephalus.”
Sawanda’s introduction to Hydrocephalus mirrors that of so many other families; “The first time I heard of Hydrocephalus was when I was 7 months pregnant with my only child, my son Ezekiel. A perinatologist diagnosed him with Hydrocephalus. He gave us the worse case scenario of what my son’s quality of life ‘may’ be. This left my husband and I devastated, feeling angry, sad, confused and alone. I want to help “fund a cure” for Hydrocephalus. More money means more research, updated information and advanced technology to help our children with an improved quality of living with this condition.”
The mission of the Pediatric Hydrocephalus Foundation is to educate the community by raising the level of awareness about this incurable brain condition. The PHF will also provide support to the families, friends and children who are diagnosed with Hydrocephalus.
The PHF will raise money for and work with the medical community in searching for a cure and additional treatment options for those with Hydrocephalus.
Additionally, the PHF will advocate on behalf of the members of the Hydrocephalus community and work with policy makers at the State and Federal level to raise awareness and push for more research and support in our fight against Hydrocephalus. The PHF will be holding fundraising events to accomplish the goals stated above.
September 1st Marks the Start of the First Ever “National Hydrocephalus Awareness Month” in the United States!
September 1, 2009 by PHF
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MEDIA CONTACT:
Kim Illions
President
Pediatric Hydrocephalus Foundation, Inc.
(732)634-1283
kim@HydrocephalusKids.org
FOR IMMEDIATE RELEASE
September 1st Marks the Start of the First Ever “National Hydrocephalus Awareness Month” in the United States!
The effort led by the Pediatric Hydrocephalus Foundation, Inc. to have Congress designate September as “National Hydrocephalus Awareness Month” is being realized today, as September 1st starts the first ever “National Hydrocephalus Awareness Month.”
In addition to raising awareness about Hydrocephalus, H. Res. 373, which passed at the end of July, is a call to action:
Whereas public awareness, professional education, and scientific research regarding hydrocephalus should increase through partnerships between the Federal Government, health care professionals, and patient advocacy groups, such as the Pediatric Hydrocephalus Foundation;
Whereas these public-private partnerships would ensure that individuals suffering with hydrocephalus and their families are empowered with educational materials, informed about the latest research, have access to quality health care, and are able to advocate for increased research and funding in order advance the public’s understanding of the condition, improve the diagnosis and treatment of hydrocephalus, and one day, find a cure; and
“We are so happy that we were able to get this done for this September. The PHF has only been in existence for 8 months and to have this accomplishment, which took 3 months from start to finish, is pretty amazing, and shows the strength, dedication and commitment from the Hydrocephalus community”, said Kim Illions, President of the PHF, Inc.
Michael Illions, the National Director of Advocacy for the PHF, Inc. added that “The response from Washington was great. Everyone we met with as we were building support, was interested to learn just how serious and common Hydrocephalus is. The hundreds and hundreds of phone calls, emails, letters and faxes from parents, family and friends within the Hydrocephalus community certainly opened up some eyes and made Congress take notice and action on the Resolution.”
“National Hydrocephalus Awareness Month” will be celebrated on September 13th, as the PHF, Inc. holds their signature event at the Roosevelt Park in Edison, NJ. The PHF 2009 WALK & Family Fun Day will be attended by over 300 people.
To register for the WALK and/or donate to the PHF, Inc., go to: www.HydrocephalusKids.org and click on “Register” or “Donate.”
All proceeds will benefit the Pediatric Hydrocephalus Foundation, Inc, the nation’s largest organization dealing solely with the support, education, advocacy and funding for research of Pediatric Hydrocephalus.
For more information please contact Kim Illions at kim@Hydrocephaluskids.org or (732) 634-1283.
Pediatric Hydrocephalus Foundation, Inc. Introduces First Official Support Group
August 23, 2009 by PHF
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For Immediate Release
Contact: Kimberly Illions
Sunday, August 23, 2009
(732) 634-1283
http://www.HydrocephalusKids.org
kim@hydrocephaluskids.org
Pediatric Hydrocephalus Foundation, Inc. Becomes Official Sponsoring Organization of JFK Medical Center’s Pediatric Hydrocephalus Support Group
Woodbridge, NJ – The Pediatric Hydrocephalus Foundation, Inc. is pleased to announce and introduce their first official support group in the Country; held at the JFK Medical Center in Edison, New Jersey.
While in existence for over 2 years now, the Pediatric Hydrocephalus Support Group has been without official outside organizational support or guidance. With the support group now falling under the leadership of the Pediatric Hydrocephalus Foundation, the PHF will work with the Hospital to grow the group, help coordinate the meetings and arrange for speakers. More importantly, with the hard economic times affecting the Hospital industry; the PHF, Inc. will provide financial support to ensure the continuation of the meetings.
Pediatric Hydrocephalus Foundation President Kimberly Illions said “We are honored to Co-sponsor this Support Group with JFK Medical Center. This has been a longtime goal of the PHF, and we look forward to adding this type of Support Group in hospitals all around the Country.”
Michael Illions, the National Advocacy Director for the Pediatric Hydrocephalus Foundation, added “These groups are a tremendous benefit to the families dealing with this condition and this support system gives them a chance to meet and learn from other families, sharing experiences and hearing from medical experts from the Hydrocephalus Community.”
The Pediatric Hydrocephalus Foundation, Inc. has made a remarkable impact since it’s inception in January 2009; starting with authoring the recently passed House Resolution designating September as “National Hydrocephalus Awareness Month”, and adding State Chapters in Missouri and California, which will carry the mission statement of the PHF, Inc. in these States.
The mission of the Pediatric Hydrocephalus Foundation is to educate the community by raising the level of awareness about this incurable brain condition. The PHF will also provide support to the families, friends and children who are diagnosed with Hydrocephalus.
The PHF will raise money for and work with the medical community in searching for a cure and additional treatment options for those with Hydrocephalus.
Additionally, the PHF will advocate on behalf of the members of the Hydrocephalus community and work with policy makers at the State and Federal level to raise awareness and push for more research and support in our fight against Hydrocephalus. The PHF will be holding fundraising events to accomplish the goals stated above.
