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PHF Sponsors Hydrocephalus Awareness Day On Capitol Hill
September 4, 2011 by PHF
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The Pediatric Hydrocephalus Foundation will be hosting a Hydrocephalus Awareness Day on Capitol Hill event on Friday, September 23rd, thanks to the Congressional Pediatric & Adult Hydrocephalus Caucus, chaired by Congressman Leonard Lance- (NJ), and Congressman Tim Walz- (MN). Parents of children with Hydrocephalus, teens and adults with Hydrocephalus, and members of the Medical Community will make presentations and tell their stories to Members of Congress and their staff. The Hydrocephalus Awareness event on Washington, DC is the first of it’s kind for the Hydrocephalus Community and the PHF is proud to be able to organize it. Immediately following the event, we will be walking the Halls of Congress and meeting with our individual Congressional Representatives for one on one discussions. For more information please email mike@hydrocephaluskids.org.
September…. Is…. National Hydrocephalus Awareness Month!!!
September 1, 2011 by PHF
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SEPTEMBER.. IS… HERE!! It is now “National Hydrocephalus Awareness Month”.. The PHF has produced an Hydrocephalus Awareness Infomercial, asking “Who is the Face of Hydrocephalus?”
It’s very emotional and gives a small glimpse into this incurable life-threatening, and certainly life-changing brain condition.
Watch it.. Then share it with your family and friends
PHF Featured Story
August 8, 2011 by PHF
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PHF Colorado State Director Ashley Fallis, her husband Thomas, and their son Blake, were featured in the Greeley Tribune.
Read the full story by Chris Casey: Blake Fallis appears to be a normal 3-year-old boy. He’s rambunctious. He asks his parents for their cellphone so he can play with the keypad. He likes to ride his tricycle.
But he has a curious-looking lump that curls from the top of his scalp down the side of his mohawk-shorn head and disappears at the base of his skull.
Little does the observer know, the scarlike lump is a shunt and tube running from the crown of his skull down to his abdomen, where it allows cerebrospinal fluid to drain and be reabsorbed into the body.
Up until two years ago, Ashley and Tom Fallis of Evans didn’t worry about Blake’s brain. He seemed to be a perfectly normal toddler — albeit one with a large head.
“We just thought he had a big head — that he took after his dad,” Ashley says with a chuckle.
But all that changed a couple of days after Thanksgiving 2009 when Blake tugged on a thread of beads that strung together a row of fireplace stockings, and their heavy holders, pulling one of the holders down onto his head.
After taking him to an urgent care clinic in west Greeley and not getting a CAT scan — a physician assistant said a scan was probably unavailable that day — they took him to North Colorado Medical Center the next day. Ashley worked in the intensive care unit at NCMC at the time, and Tom called to tell her the scan found no bleeding but “moderate hydrocephalus.” Hydrocephalus is known as water on the brain, but it’s actually an inability of cerebrospinal fluid to drain properly.
PHF June Event Recap
June 12, 2011 by PHF
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June has already turned out to be a very busy month for the Pediatric Hydrocephalus Foundation with events taking place all across the Country.
The month started off with Cole Illions, a 6 year old with Hydrocephalus and son of Michael & Kim, the Founding Members of the PHF, Inc., receiving the 2011 Patient Appreciation Award from the Neuroscience Institute @ J.F.K. Medical Center in Edison, New Jersey on June 1st.
On June 2nd, the Nebraska Chapter of the PHF also had an event as the Omaha Storm Chasers, a minor league baseball team, honored the PHF as that night’s Community Organization in front of over 5,500 fans in attendance.
With that honor, the PHF had a vendor table set up throughout the game, an on-field interview and an on-air radio interview with the PHF Nebraska State Chapter Director’s Melissa Yeshnowski & Robbie Dunlop.
Melissa’s 10 year old son Mitchell, who has Hydrocephalus, also got to throw out the first pitch!
The PHF Rhode Island Chapter’s 2md Annual Spaghetti Dinner fundraising event on Saturday June 4th was a well attended successful event, as State Director Rebecca Minasian continues to do her part in raising awareness and money for Hydrocephalus Research on behalf of her daughter Caitlin, and other children with Hydrocephalus in Rhode Island.
PHF New Jersey’s Day at the Races event on Sunday June 5th @ Monmouth Park Race Track was sold out 2 weeks prior to the event. In Oceanport New Jersey, the hometown of the famous race track, Mayor Michael Mahon, along with the Borough Council, previously proclaimed that Sunday June 5th was Hydrocephalus Awareness Day.
The PHF also sponsored the 2nd race of the day and in the Pediatric Hydrocephalus Foundation Challenge, Innisfree, with jockey Elvis Trujillo, crossed the finish line to win the trophy.
Jumpin Jeepers New York Fundraiser Raises Over $800.00
April 23, 2011 by PHF
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Jennifer & Jaime Mingst with their son Thomas.
The Tuesday, April 19th fundraising event at Jumpin’ Jeepers play center in Mahopac, New York, to benefit the Pediatric Hydrocephalus Foundation was a smashing success, raising over $850.00!
Jennifer Mingst, the PHF’s New York State Chapter’s Event Coordinator, was thrilled with the results; “The management team at Jumpin’ Jeepers did a great job in organizing this event for the PHF, and thanks to their generosity and support, the results were incredible. We are excited that this will now be a yearly event!”
With 15 State Chapters and dozens of events planned in 2011, the PHF has something for everyone to participate in!
About JUMPIN’ JEEPERS: Is a 3,000 square feet indoor play center for children ages 1 – 9 and includes an open play space, an imaginative play section, a dedicated toddler area, party rooms, and the Jeepers Café. Our learning playground is created to promote physical, social, and cognitive development in children. The playspace is cleaned throughout the day with eco-friendly cleaning products. Our open layout is designed to make it easy to view your child at play. It’s fun for kids and relaxing for parents!
Special Needs Children – At Jumpin’ Jeepers we are sensitive to the needs of children with learning and developmental disabilities, behavior issues, and medical concerns. We have taken several steps to encourage fun, healthy play for all children.
