Introducing the National Face of Hydrocephalus Awareness in 2012: Mackenzie Holcomb

The PHF is proud to present the winner and now the National Face of Hydrocephalus Awareness 2012, Mackenzie Holcomb:

Mackenzie was born in June 2000, and was diagnosed with hydrocephalus July of 2008 along with two brain gliomas. She had to have revisions in Oct 2008, March 2010, April 2010, Dec 2010 and just had another revision on Dec 23, 2011. Her Mom’s name is Amy and her Dad is Gary. She has two older brothers Brandon(26) and Paul(24). She has a kitty named Black Jack and is a huge Justin Bieber fan.

National Face of Hydrocephalus Awareness Contest Video

Watch the video of the contest drawing for PHF’s 2012 National Face of Hydrocephalus. Forward the video to the 2:14 mark to bypass advertisement and sound testing.

The winners are Mackenzie Holcomb, from Ohio, born in June 2000 and Jaden Brown, from Colorado, born April 2010.

Contest Winners Chosen & Announced LIVE Tonight!

The PHF will randomly select the winners of the National Face of Hydrocephalus Awareness Campaign Contest tonight, Tuesday, January 3rd, @ 8:00pm EST. The winners, one boy & one girl, from 159 entries will each receive a $500.00 donation in their name to the hospital/neurosurgeon of their choice.

Both winners will be featured as the PHF’s Spokesperson in a National Campaign to raise Hydrocephalus Awareness in 2012 leading us into September’s National Hydrocephalus Awareness Month!

You can watch the drawing life tonight @ 8:00pm EST by going on the Internet and visiting http://www.ustream.tv/phfcontest
(This is free and no additional software or hardware is required)

In addition, as soon as the drawing is finished, a copy will be loaded onto Facebook, Youtube and PHF Website.

Good luck to all our contestants!

PHF Featured Story: Glen Ridge High School Junior Goes to Congress

High School Teenager Collette Umar talks about her experience on Capitol Hill for the Hydrocephalus Awareness Day event

Read the full story: Last Friday, September 23, Glen Ridge High School student Colette Umar delivered a speech in Washington, DC at the first Congressional Adult and Pediatric Hydrocephalus Caucus.

The caucus, was co-chaired by Congressman Leonard Lance and Congressman Tim Walz along with the Pediatric Hydrocephalus Foundation. It was held in the Cannon building and was attended by members of Congress, aides, medical experts, foundation personnel and families affected by hydrocephalus.

  Collette and her father Erich Umar.

PHF Featured Story- PHF GA 1st Annual Hydrocephalus Awareness WALK & Family Fun Day

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LOCAL PROFILE: Sawanda Spinks, President of Georgia Pediatric Hydrocephalus Foundation

Read the full story by Eden Godbe: ATLANTA – Sawanda Spinks was eight-months-pregnant when she learned her first child would be born with hydrocephalus.

“I had never heard of it; I didn’t know what it was but when I heard the risks, I started crying; I couldn’t take listening to that”, she said.

Spinks had gone into the emergency room for a pulled muscle but when she left her life was changed, forever.

Hydrocephalus is a condition that affects 1-in-500 infants. The condition, also known as having “water on the brain”, happens when fluid accumulates on the brain and in the skull cavities.

As any first-time parent would Spinks visited countless specialists, searching for good news, before she would give birth to her son a month later; she heard none.

“Doctors didn’t give us much hope but they were doing their job, they’re supposed to tell you the worst case scenario”.

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